Jacqui's interview
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How did all start?
Born with the condition
Do you already have a diagnosis? How long did it take you to get it?
Diagnosed aged 40
For what medical specialties have you been treated? What has been the most useful specialty for your?
Bone abnormalities. Removal of right patella
What has been the most useful thing for you so far?
Reading posts from others on forims
What have been your biggest difficulties?
Bowels. Bent arm. Bad knees. Osteoarthritis. Intolerance to pharmaceuticals
How has your social and family environment reacted? Have your social or family relationships changed?
Nolong walks & some exercise
What things have you stopped doing?
Long walks, hills. High impact exercise
If you had to describe your life in a sentence, what would it be?
Wonderful & blessed
Finally, what advice would you give to a person in a similar situation?
Don't let it define you. There is a lot worse to be had
