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Living with Nail-patella syndrome. How to live with Nail-patella syndrome?
Living with Nail-patella syndrome: how patients cope day to day and stay positive - real experiences and practical tips.
I am not happy with it. It causes me a lot of pain but I push through the pain, I have my surgery and my medication and I do what I think will make me happy both short and long term. We aren't the only ones.
Posted Mar 4, 2017 by Charlielottie 1175
Not different without it, we are prepare
Posted Feb 12, 2018 by Alan 1100
Go about daily life as normal as possible.
Posted Apr 15, 2018 by Amanda 800
Pretend like you don’t have it cuz honestly I found it thru out my sisters and just my knee caps aren’t regular and I’m starting to have lots of weakness but I push a bit thru it and try not to pay attention to it. (Smokes lots of weed too)
Posted Jan 18, 2019 by Austin 200
Even tho i had several problems from nps (a few surgeries), it didnt stop me from being happy. It did stop me from doing things i would have really liked to do as a kid. But there's plenty of other things to do that can be enjoyable. If you have people you can count on, you should be okay
Posted Jan 21, 2026 by wusong25 160
