Me

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My story begins with saying that I knew something was wrong at a young age but it was not until I was older that I got diagnosed with NPS. I was a active child, I always had pain in my knees and issues with my teeth as log as I can remember, but nothing major until I had my second child (2000) My kidneys failed, blood clots, spent over half of my pregnacy in the hospital, it was long and rough, but I knew then something was really wrong. Drs were confused and just said it was a random, not to worry. Then in 2005 my knees were failing and not wanting to function, the pain was beyond any pain scale could describe. It took 3 years until a Dr finally decided to do sugery. Dec 2008 my first knee sugery, was to be a reconstruction, ended up becoming a patelaectomy!! ( removal of the knee cap) Oct 2010 was the second sugery doing the same. My life went crashing down, My hips and lower back went down from there. Finally in 2012 after years of xrays, MRI, nerve test and countless physical therapy treatments I FINALLY was diagnosed with NPS!! Now the next problem, there was not a Dr around who knew what it was or how to treat it. That brings us to 2016, I still have not found a Dr that will handle my case. I have been bounced all over. My goal now is just try to take care of myself and know that I am not alone!!!