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Can people with Nemaline Myopathy work? What kind of work can they perform?
Can you work with Nemaline Myopathy? Real patients share what jobs they do and how they adapted, plus practical guidance.
As Nemaline Myopathy causes muscle weakness, any manual labour jobs would not be ideal for someone with this condition. However desk based jobs would be suitable.
Posted Feb 24, 2017 by Star 1270
Those mildly affected can and do work in paid employment, such as writers, computer technicians, social workers, graphic designers, museum attendant, and clerks. A small percentage work at some point in their lifetimes, and most of those leave the work force early due to the debilitating nature of the condition as one ages. The best types of jobs would be those one could do from home, part-time, or with a flexible full-time schedule and do not require physical effort.
Posted Aug 28, 2017 by Stacy 500
It's really hard as it's a case by case basis. Things that cause fatigue would be hard. A job that has more sitting than standing and a job that requires brains not muscle! Nemaline peeps are usually gifted smart! Some may be on ventilators making it very difficult to work. Some may need accommodations.
Posted Aug 29, 2017 by Mary Jo Draisma 2100
Translated from portuguese
Improve translation
yes, but that does not require much effort on the physical
Posted May 29, 2017 by Danielle 1150
