Does Parry-Romberg syndrome / Progressive hemifacial atrophy have a cure?
Is there a cure for Parry-Romberg syndrome / Progressive hemifacial atrophy? Current treatment landscape and research progress, medically reviewed, plus patient experiences.
Find people with Parry-Romberg syndrome / Progressive hemifacial atrophy through the map. Connect with them and share experiences. Join the Parry-Romberg syndrome / Progressive hemifacial atrophy community.
My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...