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How do I know if I have Parry-Romberg syndrome / Progressive hemifacial atrophy?

What signs or symptoms may make you suspect you may have Parry-Romberg syndrome / Progressive hemifacial atrophy. People who have experience in Parry-Romberg syndrome / Progressive hemifacial atrophy offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Parry-Romberg syndrome / Progressive hemifacial atrophy?
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Do I have Parry-Romberg syndrome / Progressive hemifacial atrophy?

Parry-Romberg syndrome / Progressive hemifacial atrophy life expectancy

What is the life expectancy of someone with Parry-Romberg syndrome / Progre...

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Celebrities with Parry-Romberg syndrome / Progressive hemifacial atrophy

Celebrities with Parry-Romberg syndrome / Progressive hemifacial atrophy

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Is Parry-Romberg syndrome / Progressive hemifacial atrophy hereditary?

Is Parry-Romberg syndrome / Progressive hemifacial atrophy hereditary?

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Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious?

Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious?

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ICD9 and ICD10 codes of Parry-Romberg syndrome / Progressive hemifacial atrophy

ICD10 code of Parry-Romberg syndrome / Progressive hemifacial atrophy and I...

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Natural treatment of Parry-Romberg syndrome / Progressive hemifacial atrophy

Is there any natural treatment for Parry-Romberg syndrome / Progressive hem...

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Living with Parry-Romberg syndrome / Progressive hemifacial atrophy

Living with Parry-Romberg syndrome / Progressive hemifacial atrophy. How to...

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Parry-Romberg syndrome / Progressive hemifacial atrophy diet

Parry-Romberg syndrome / Progressive hemifacial atrophy diet. Is there a di...

3 answers

World map of Parry-Romberg syndrome / Progressive hemifacial atrophy

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Stories of Parry-Romberg syndrome / Progressive hemifacial atrophy

PARRY-ROMBERG SYNDROME / PROGRESSIVE HEMIFACIAL ATROPHY STORIES
Parry-Romberg syndrome / Progressive hemifacial atrophy stories
ACCEPTANCE
My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...

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