Sonja Riskey's interview
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How did all start?
Started with nose flares then ear flares and now added ribs.
Do you already have a diagnosis? How long did it take you to get it?
Yes took me 7 years
For what medical specialties have you been treated? What has been the most useful specialty for your?
ENT Rheumatologist
What has been the most useful thing for you so far?
Actemra infusions
What have been your biggest difficulties?
The pain
How has your social and family environment reacted? Have your social or family relationships changed?
I am no longer able to work
What things have you stopped doing?
Working and doing volunteer work
What do you think about the future?
I don’t
So far, which years have been the best years in your life? What have you done during them?
Don’t know
What would you like to do if you didn’t have your condition?
Work
If you had to describe your life in a sentence, what would it be?
Live one day at a time.
Finally, what advice would you give to a person in a similar situation?
Be your own advocate
