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Which advice would you give to someone who has just been diagnosed with Superior Mesenteric Artery Syndrome?

Advice for the newly diagnosed with Superior Mesenteric Artery Syndrome, written by people who have lived it. What they wish they had known on day one.

Superior Mesenteric Artery Syndrome advice
6 answers
Dont run to the internet and Google it straight away.everyones body is different what one person goes through with sm syndrome and the next person is different.

Posted Apr 18, 2017 by Venesia 1585
Find a doctor who is actually knowledgeable about the condition and do your research.

Posted Apr 19, 2017 by Nikki 2192
To not read about go to Dr.Nydan in Aurora,co knows the most About this disease in America.

Posted May 28, 2018 by Alexis 2500
The best advice to tell someone that just got diagnosed with Superior Mesenteric Artery Syndrome is "Your journey and your experience can be used to help others"

Posted Mar 14, 2020 by Macy Mae 2550
Dont stop fighting!!! The road for recovery will be rough but in the end worth it. Keep your head up and know you are not alone.

Posted Jan 28, 2021 by Babypay1 2650
Watch calorie use and calorie intake. Eat small amounts if you can through out the day and drink nutritional drinks, try to stay as hydrated as you can

Posted May 18, 2021 by Sarah Steffen 1100

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World map of Superior Mesenteric Artery Syndrome

Find people with Superior Mesenteric Artery Syndrome through the map. Connect with them and share experiences. Join the Superior Mesenteric Artery Syndrome community.

Stories of Superior Mesenteric Artery Syndrome

SUPERIOR MESENTERIC ARTERY SYNDROME STORIES
Superior Mesenteric Artery Syndrome stories
My name is Shawn and I live in Southern Oregon. I have the congenital form of SMAS. I didn't notice the changes going on back in 1991. It was my Wife that pointed out to me that I would often wake around 3-4am and vomit, very violently. Then I would ...
Superior Mesenteric Artery Syndrome stories
January 2011...I was rushed to hospital as 10 inches of my bowel had died, I had a bowel resection and 12 days later I was sent home, but within a day or too I was getting awful pain in my stomach after eating or drinking, being sick, no pain killers...
Superior Mesenteric Artery Syndrome stories
My name is Michelle and Alecia is my daughter.  Alecia got sick in April of 2009 and was diagnosed with gastroparesis a few months later.  It wasn't until March 1, 2011that she was diagnosed with SMAS.  She had her Lap Duodenojejunostomy done on J...
Superior Mesenteric Artery Syndrome stories
Growing up I was a happy healthy child until I hit my teens !! It started with ovarian cysts and endometriosis which we. Managed to get it under control once I was put on a birth control shot. Then in 2004 it wasn't feeling too good again to find out...
Superior Mesenteric Artery Syndrome stories
After months of being told its a stomach virus ..i sought outba second opinion.. she was seen with gi and what they thoight was either Crohn's disease or her  celiac acting up  instead found a clear cut case of Superior Mesenteric Artery Syndrome.....

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