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What are the best treatments for Hereditary multiple exostoses?
Treatments for Hereditary multiple exostoses: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.
Traditional treatment
Posted Sep 12, 2017 by Helmina Batubara 700
Most treatments are symptomatic and supportive.
Surgery may be required to relieve pain, improve movement, restore normal circulation, or for cosmetic reasons.
Monitoring the size of affected bones by annual scans to screen for malignant degeneration is sometimes recommended. In that condition surgery is needed.
Rapid growth and increased pain are signs of a possible malignant change.
Genetic counseling is recommended for affected individuals and their families.
Surgery may be required to relieve pain, improve movement, restore normal circulation, or for cosmetic reasons.
Monitoring the size of affected bones by annual scans to screen for malignant degeneration is sometimes recommended. In that condition surgery is needed.
Rapid growth and increased pain are signs of a possible malignant change.
Genetic counseling is recommended for affected individuals and their families.
Posted Nov 30, 2017 by Zahra 1950
Honestly there is really no treatment except for one there is at the door you can wear one of them is cutting off circulation to something or it's something or they're causing pain in which that case go go in and no surgically scrape the bone other than that there's really nothing you can do except for you know do your doctor's appointments that you need to do you know every year keep up with it if anything gets worse you know you call your doctor let you keep up with that it is really crucial that you do it
Posted Dec 1, 2017 by Diana 920
