Pacing,Ruhepausen,Kräfte einteilen.
Nutrients
MAF (macrophage activating factor) probiotic and ketogenic diet put me in full remission since 2017
Meditation
Probiotics
Having things to do
Comprension
Using a wheelchair when I go out helps me conserve energy so that I can be more present.
Having supportive friends, family and partner.
Support from family and friends
Her stomach has stopped functioning right so her food is almost all have to be blended up
Moving away from a stressful neighborhood
Finally found an excellent counselor who has helped me immensely with depression, etc.,
Pacing
A gluten, sugar, yeast and dairy free diet
A gluten, sugar, yeast and dairy free diet
sleep
Pacing my Activities. A must!
Pacing
COMPRENDRE la maladie; reconnaître les symptômes.
Strict discipline about food and sleep
Energy pacing
Pacing/budgeting of exertion (both physical and mental) and sensory input (light and sound)
No tomo medicación porque tengo mucha intolerancia a élla
Having a GP that believes me, and believes in me has made the biggest difference.
Pacing
Eat the same basic straight foods all the time. It keeps things simple
El antiviral que tome para mi viriasis cronica estrañamente pareciô ser el desencadenante de la mejoria casi total del dolor durante un año
Modafinil (for post-infectious hypersomnia).
The status quo of this disease is disastrous and needs to change
Ketotifen - mast cell stabiliser
Pacing: accept that I cannot do it all
Finding a Complex Diseases Management Specialist
Supportive spouse
8 hours of sleep a night
Sodium cromoglycate
Myalgic Encephalomyelitis
my spirituality
hyperbaric oxygen therapy
LDN medication
FTIR Sauna, Chemical Avoidance, Exercise, Sunshine (immune suppressant)
Knowing my limits!
I take Lyrica/pregabalin for nerve pain and Cymbalta/duloxetine for muscle pain.
Macrobiotic diet
My always caring and supportive partner
my mom who is very supportive and looks for long term solutions to issues
being open and vulnerable with close friends and family
Ubiquinol
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