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Living with Interstitial Cystitis. How to live with Interstitial Cystitis?
Can you be happy living with Interstitial Cystitis? What do you have to do to be happy with Interstitial Cystitis? Living with Interstitial Cystitis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Interstitial Cystitis
IC is beyond difficult. It is your constant companion. I give it a name and a face. I lean into it. Some days I curse it. Other days I embrace it. It requires a lot of rest. A lot of clean food. A lot of friends and family who care and who understand. I strive to not be a hermit. It takes too much energy at times to not be. But you give it your all. Your best. And move along through this life with IC.
Posted Sep 27, 2017 by Cindy 600
Listen to your body and adjust accordingly.
Posted Jun 10, 2018 by SaraLouise 2500
Lately, it really hurts in that area due to needing a more current surgery to burn and stitch up my ulcers—so many pelvis and lower back her. Also barely can hold my bladder and am in a lot of pain if I attempt to do so. When keeping up with your medications or treatment makes it more manageable and less impactful in your life.
Posted Apr 11, 2021 by Shawna 1250
Translated from spanish
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You can live, but you can't be very happy if you want to have a child, as the medication is my way of living .
Posted Jul 17, 2017 by Dany 2005
Translated from spanish
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It is a process in which the acceptance of the limitations, it seems a purpose that is unattainable, but you can get to live well.
Tap reevaluate all of our concepts, project life, and life itself.
But something that I don't agree is that we condemn them to endure intense pain and that not just ask us to endure pain, but give cone if you don't have to.
After passing by many urologists that told me that there was nothing to do and that I get used to not sleep, study, rest, and to be able to focus, an intense pain interferes with everything, I found professionals who did everything possible to help lessen the pain and they succeeded. I still believe that my pain is high, in some moments, and I restrict a lot but I'm struggling to handle it better.
The conflict, in my opinion, is that the CI generates a little or a lot disabled by the pain, the tiredness and the urgency to urinate, a basic need of the human being who does not wait to be resolved, make it difficult to fulfill daily responsibilities and as our disability is invisible, so often are, unfairly, pressured to comply.
This is something that comes and goes, some days are good, some bad, some facilities for the affected CI would be of much help.
The possibility of having priority seating on public transportation, priority attention in health and public services, the possibility to ask for a bathroom in any place, and for those who are very affected a degree of disability sufficient to obtain a pension.
But it is not to be frightened, and with diet and treatment to control the symptoms in most of the cases, but my pain and the urgency never go for me at all and I think it is fair to have more facilities to be able to have more freedom.
I live happy, I found it hard, even hard for me, but if some things change, the access to the available treatments is easier and it encourages research about this disease, it is practically void of research, you can retrieve a lot of quality of life.
Tap reevaluate all of our concepts, project life, and life itself.
But something that I don't agree is that we condemn them to endure intense pain and that not just ask us to endure pain, but give cone if you don't have to.
After passing by many urologists that told me that there was nothing to do and that I get used to not sleep, study, rest, and to be able to focus, an intense pain interferes with everything, I found professionals who did everything possible to help lessen the pain and they succeeded. I still believe that my pain is high, in some moments, and I restrict a lot but I'm struggling to handle it better.
The conflict, in my opinion, is that the CI generates a little or a lot disabled by the pain, the tiredness and the urgency to urinate, a basic need of the human being who does not wait to be resolved, make it difficult to fulfill daily responsibilities and as our disability is invisible, so often are, unfairly, pressured to comply.
This is something that comes and goes, some days are good, some bad, some facilities for the affected CI would be of much help.
The possibility of having priority seating on public transportation, priority attention in health and public services, the possibility to ask for a bathroom in any place, and for those who are very affected a degree of disability sufficient to obtain a pension.
But it is not to be frightened, and with diet and treatment to control the symptoms in most of the cases, but my pain and the urgency never go for me at all and I think it is fair to have more facilities to be able to have more freedom.
I live happy, I found it hard, even hard for me, but if some things change, the access to the available treatments is easier and it encourages research about this disease, it is practically void of research, you can retrieve a lot of quality of life.
Posted Sep 2, 2017 by Ana 3358
Translated from spanish
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The happiness depends on the positivity of each person and the way it approaches. In my case I have 17 years suffering chronic pain both by fibromyalgia as cystitis intersicial and always try to look at something positive. There are people much worse than me, and with diseases of death.
Posted Nov 23, 2017 by LPilar 2500
